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Data collection

No. of patients

Age (years); standard deviation

Estimated per million population incidences

Estimated per million population prevalence

Spanish registry

1998 – 2008

162

61; 15

0.9

3.2

UK

2001 – 2006

469

60; 14

1.75

-

UK National Audit

2012

7000

-

4.3 – 4.9

12.9 – 27.3

UK National Audit

2013

7757

-

4.4 – 4.6

10.8 – 38.4

Assessing the Spectrum of Pulmonary Hypertension Identified at a Referral Centre (ASPIRE) registry

2001 - 2010

1344

-

0.3- 3.7

-

CTEPH European registry

2007 - 2009

679

63

5.7

-

Portuguese registry

2008 - 2010

33

60.3; 12.5

1.1

-

German registry

2014

272

68

4.0

-

Korean registry

2008 - 2011

134

58.3; 15.9